SUPPORT GROUPS

The Parent Resource Center

 

                                Support Groups    

Want to join a support group?    

   AD/HD    |   Autism/Asperger’s Syndrome    |   Chronically Ill   

  Deaf/Hard of Hearing   |    Down Syndrome    |   Dyslexia    

   Emotional Disabilities    

Learning Disabilities    |   Medical Support     

Special Needs    |   Vision    

 

Download print friendly version of this document.

 (PDF of the Support Groups list)

Students in class
 

  

We have found these web site links to be especially helpful for finding information on a variety of topics that are often hard to find.

We have tried to make this list as accurate and up to date as possible. Keep in mind, however, that web sites often move or may be under repair.

 

 

AD/HD

 

          CHADD of Northern Virginia

http://www.novachadd.org

Information and support for parents of children with attention deficit

disorders, adults with attention deficit disorders, and others dealing

with people affected by attention deficit disorders.

 

Autism/Asperger’s Syndrome

 

Parents of Autistic Children (POAC-NOVA)

http://www.poac-nova.org

Resources and support for parents of autistic children

 

Arlington AS IS

Email:  aclaster@aol.com

Phone:  703-276-0748

Asperger’s Syndrome information and support

 

Asperger’s Syndrome Support

Email: bloss@erols.com

Phone:  703-866-2115

Asperger’s Syndrome information and support in the

Kingstowne, Virginia area

 

Autism Society of America

www.asanv.org

Northern Virginia Chapter provides research, treatments, and support

 

Chronically Ill Child

American Diabetes Association (ADA) - National

Email:  AskADA@diabetes.org

http://www.diabetes.org

1701 N. Beauregard Street

Alexandria, VA 22311

Help for Children with Chronic, Life-Threatening Illnesses and Disabilities

Brave Kids http://www.bravekids.org/Sitemap.aspx

Deaf/Hard of Hearing

 

Northern Virginia Cued Speech

www.nvcsa.org

Provides advocacy, education and support for families and professionals

who choose to use Cued Speech with deaf or hard of hearing children.

 

Northern Virginia Resource Center

www.nvrc.org

Provides education, advocacy and support to the deaf and hard of hearing

 

 

Down Syndrome

Down Syndrome Association of Northern Virginia

www.dsanv.org

Resources and support for families and children with Down Syndrome

 

Dyslexia

 

International Dyslexia Society

www.interdys.org

Resources and support for individuals with dyslexia

 

 

Emotional Disabilities

EDFairfax

A parent run internet support group for parents and guardians of

children with “Emotional Disabilities” living in Fairfax County.

To join,

 

NAMI of Northern Virginia

http://www.naminova.org/SupportGroups.htm

Support groups for families dealing with emotional disabilities and mental illness

 

Virginia Federation for Families of Teens at Risk (VAFOF)

Phone:  Toll Free:  1-888-604-2677 ext. 103

State organization providing support to families of children with mental, emotional

and behavioral disorders

 

 

Learning Disabilities

 

National Dissemination Center for Children and Youth with Disabilities

www.nichcy.org

Central source of information and support for children with disabilities

 

Non-Verbal Learning Disabilities

Phone:  703-467-8066

Information and support group for non-verbal learning disabilities

 

 

Medical Support

Depression and Related Affective Disorders Association (DRADA)

www.drada.org

Email:  drada@jhmi.edu
Phone:  410-955-4647 or 202-884-3964

Offers professional counseling, medical referrals, and peer support

 

Epilepsy Foundation

www.epilepsyfoundation.org

Research, advocacy, e-newsletter & ecommunity chat room for local chapters

 

National Organization on Fetal Alcohol Syndrome

http://www.nofas.org/

Resources, education & listserv to help improve the quality of life for

families dealing with birth defects

 

Special Needs

 

Parent-to-Parent of Virginia

http://www.ptpofva.com/

Support, education and training for parents of children with disabilities

 

Tourettes Syndrome Association of Greater Washington

www.tsagw.org

Support groups, presentations, referrals and events for children and adults

with Tourettes Syndrome

 

          The UMFS Adoptive Support Group

           mathey88@yahoo.com

           Contact Lisa Mathey @ 703-347-5049

 

 

Vision

 

National Association for Parents of the Visually Impaired

www.NAPVI.org

Provides information and resources for children who are blind or visually

impaired, including those with additional disabilities.

Parents of Children with Visual Impairments

Meets the first Friday of each month (alternating AM and PM meeting times) in the Springfield/Burke/Fairfax/Annandale area. 

Linda Wood 4thwoods@verizon.net or Kristin Kelso ca.kristin@verizon.net

703.764.9042 or 703.440.9779

 

 

Please be patient with us, as we have reorganized and are redesigning our web site

(this is our temporary, interim site.)  Thank you.